Daughter update

tubabucknut

Just got back from Duke Eye Care Center. My daughter's eye sockets are growing well, and we will be having a test done on her optical nerves in the near future. We are still hoping for sight down the road. They are no longer using anesthesia for her exams. Definite bonus, as any time you go under is risky.

We enter the decanulation(trach removal) window starting in May. If her lungs are strong enough they will remove the trach, and we can finally be done with the nurses. I know we have some nurses on the board, and they are great, but having nurses in your home almost everyday for the last two years SUCKS, no matter how good they are. So please pray for her lungs if you are of the mind to do so.

Still all good news for now. Thanks to you all for the kind thoughts and prayers you have sent out already.

zorba

:angel::angel2::angel:

bhl2506

:angel2::angel2:

early

Wishing her, you and yours the very best

Big Chief

:angel2: :angel2:

NN

:angel2:

tubabucknut

Thanks guys. A lot.

Wambli, I posted that pic for you.

Diver43

Wishing you and yours the best of everything and continued improvement for your little girl.

sakodude

Beautiful family, they look happy. So very glad things are getting better for your daughter. Prayers for continued progress.

Sako

waipapa13

:angel2: I'm looking forward to reading about her continued improvement.

rberglof

Prayers for your daughter!:angel2::angel2:

coolgunguy

She is a sweetheart! Of course prayers will continue...you didn't need to ask, but I'm glad you did, else we wouldn't have seen her pic!

woodsrunner

tub, your family and your Daughter have my strongest and most positive thoughts. It will work for all of you, and you can totally accept and believe that! Please keep us posted!

BAMAAK

:angel2: for your little angel

LMLarsen

:applause:

JeffnBama

She's a Sweetie!

tubabucknut

Thanks again for all the kind word, thoughts, and prayers guys. She's my little angel, and I look for help and prayers wherever I can. My wife and I both appreciate all of your help.

CHIRO1989

Still Praying:angel2:, check into the Lions to see if they can help, they have an eyesight committee, one of my clubs members just got to meet a guy that had his sight restored with a "bionic eye", his sight is transmitted from a camera on his glasses to the sight part of the brain, I believe, I have not had time to get up to speed on what the guy had done, less than 100 folks have had the procedure done so far.

tubabucknut

CHIRO1989 wrote: »

Still Praying:angel2:, check into the Lions to see if they can help, they have an eyesight committee, one of my clubs members just got to meet a guy that had his sight restored with a "bionic eye", his sight is transmitted from a camera on his glasses to the sight part of the brain, I believe, I have not had time to get up to speed on what the guy had done, less than 100 folks have had the procedure done so far.

Thanks Chiro. One of my best friends is a Lion. He has already offered their support. We will take it if needed, but for now we want those funds going to the less fortunate. The eye procedure you mentioned is the primary one we are working towards. A receiver is placed on the optic nerve, and the camera is located in a pair of glasses. At one point last year only 17 of those procedures had been performed in the US. It is either Michigan State, or University of Michigan leading the way with this procedure. It has been done elsewhere as well. We are fortunate to be where we are right now. Duke has one of the best eye care centers in the country, and Lauren's opthamologist is one of the best in the country. People come from all over just to see here.

Barryd

Give that little girl a big hug.

CHIRO1989

tubabucknut wrote: »

Thanks Chiro. One of my best friends is a Lion. He has already offered their support. We will take it if needed, but for now we want those funds going to the less fortunate. The eye procedure you mentioned is the primary one we are working towards. A receiver is placed on the optic nerve, and the camera is located in a pair of glasses. At one point last year only 17 of those procedures had been performed in the US. It is either Michigan State, or University of Michigan leading the way with this procedure. It has been done elsewhere as well. We are fortunate to be where we are right now. Duke has one of the best eye care centers in the country, and Lauren's opthamologist is one of the best in the country. People come from all over just to see here.

Excellent! You friend is doing his job as a Lion, I am glad to hear you looked into it already:up:

MississippiBoy

Somebody started chopping onions in here just about the time I looked at that picture. That's a GREAT photo.....
Your little girl will stay in my prayers. Here's hoping the good news will keep coming.... :angel2:

tubabucknut

Thanks guys

HAWKEN

Prayers sent brother..........robin :angel2:

bobbyrlf3

:angel2::angel2:

tubabucknut

Thanks guys!